Latest MS News: Gilenya, Goat’s Blood, + Greed + Please Share My #MSWarriorMotto #curems





Beauty is everywhere. Life is beauty.

I’ve searched the internet and compiled the latest multiple sclerosis news from this past week. I don’t know about you but I like to stay up to date with the research studies, clinical trials, and the person-centered stories.

This first news story has me highly irritated as there’s just no excuse. The head of GlaxoSmithKline’s Research and Development department in China has been fired for misrepresenting data. The recently published study centered around T cells removed from persons with multiple sclerosis. As a result of the scandal, another researcher has resigned and three employees were placed on suspension. Nature Medicine published the study and you can read their response posted on their blog. Regarding the researchers and their lies, I think it all comes down to one word—greed.

Starting next year, the Affordable Health Care Act sets maximum limits on how much consumers can be required to pay annually out-of-pocket. But some people with high drug costs may find the limits don’t protect them yet.  According to Bari Talente, executive vice president of advocacy at the National Multiple Sclerosis Society:  “People living with multiple sclerosis and other chronic illnesses have been counting on this annual out-of-pocket limit coming, and now that may not happen in 2014.”

Swiss drugmaker Novartis has announced some promising results from it’s Phase III Transforms study. The study demonstrated how prescription drug Gilenya (fingolimod) was effective against four key measures of disease activity in multiple sclerosis:

  • brain volume loss
  • lesion activity
  • relapse rates
  • and disability progression.

Improvements were seen in patients who switched from standard interferon treatment to Gilenya within 12 months of the switch and up to the end of the 4.5 year extension study.

A medical test previously developed to measure a toxin {acrolein} found in tobacco smokers has been adapted to measure the same toxin in people suffering from spinal cord injuries and multiple sclerosis. Acrolein is produced in the body after nerve cells are injured which then triggers biochemical events that worsen the injury’s severity {nice right?}. Researchers believe that acrolein may play an important role in multiple sclerosis and other conditions.

This is a bit controversial but interesting. At the joint meeting of the Consortium of Multiple Sclerosis Centers and the Americas Committee for Treatment and Research in Multiple Sclerosis, investigators reported that a goat blood product called AIMSPRO helped a significant number of patients with secondary progressive MS. The goat blood drug was given to patients via subcutaneous injection ranging from twice a week to once every two weeks.  Would you consider taking a drug that consists of goat blood?

 

The words in the graphic below are my own. I’m calling it the MS Warrior Motto.  

Pin it, tweet it, or facebook it but please just share it. 

Until next time my fellow warriors…..keep fighting.

 

#mswarriormotto #curems #mssucks

Kimberly--Blog Owner

Kimberly is the owner and editor of Saving More Than Me.  She started blogging in 2009–one year after receiving a Multiple Sclerosis diagnosis. She lives in Richmond, VA with her husband and five fur kids. If you’d like to learn more about Kimberly {including what subjects her Master’s degrees are in}, click here.

Kimberly--Blog Owner

Kimberly--Blog Owner

One comment

  1. Michelle Elizondo

    My heart goes out to those with the condition. I wish there was a cure.

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